Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
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Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
The transplant nurses at the Allgemeine Krankenhaus (AKH) in Vienna, Austria, where I underwent a life-changing double lung transplant in 2002, not only provided unparalleled medical care but also demonstrated exceptional warmth, kindness, and compassion. Their unwavering support was instrumental in my recovery journey. Today, I wish to extend my heartfelt tribute to these remarkable nurses, as well as to all the dedicated healthcare professionals who stand by our side during what may be the most challenging moments of our lives. #transplantnursesweek #ESOT_ETHAP ESOT - European Society for Organ Transplantation #lungtransplant #pulmonaryhypertension #organtransplant
During this time of 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗧𝗿𝗮𝗻𝘀𝗽𝗹𝗮𝗻𝘁 𝗡𝘂𝗿𝘀𝗲𝘀 𝗪𝗲𝗲𝗸 in 2024, we want to express our gratitude to all the amazing transplant nurses who continue to show exceptional dedication to their patients and families. You are making an impact on many lives. #transplantnursesweek #ESOT_ETAHP #PoweredByESOT
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Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
Register here: https://lnkd.in/erj-Kx2X
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Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
For those like myself who spent a very long and difficult time in the ICU (after my double lung transplant in 2002) this is absolutely wonderful! I wish it had existed at the time. A fantastic technology that can drastically improve the hospital experience, alleviate some of the mental health issues that are quite common in ICU settings, and contribute to overall recovery.
Senior software developer & architect | Follow me If you want to enjoy life as a software developer
🌟 ICU Patients Find Healing and Joy Through Virtual Reality-Powered Vacations and Exercise 🏥💪 🤒 ICU patients are experiencing a revolutionary boost in their well-being through a unique combination of Virtual Reality (VR) and exercise. 🏥🏋️♀️ By wearing a special VR headset, patients embark on virtual vacations while engaging in personalized exercise routines. This innovative approach not only offers a mental escape from the hospital environment but also promotes physical activity tailored to their health needs. 🌴💪 This powerful blend of technology and exercise not only improves the hospital experience but also contributes to overall recovery. Credit : Darlan Nitz 🥽 #innovation #technology #virtualreality #healthinnovations
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Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
Many thanks to Medscape for having given me the opportunity to present the pulmonary arterial hypertension patient perspective on behalf of AIPI Italian Pulmonary Hypertension Association as part of their "Cardiology Decision Point" series, which features insights from experts via short videos. https://lnkd.in/eXeHXhfP
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Volunteer patient advocate | former pulmonary hypertension patient, 22 years post double lung transplant | Secretary General Alliance for Pulmonary Hypertension | President AIPI Italian Pulmonary Hypertension Association
Big thank you to admedicum for inviting me to take part in this podcast series!
In this 7th episode of the Patients on the Move Podcast, host Roger Legtenberg ⚛ sits down with Pisana Ferrari, a well-recognized pulmonary hypertension patient advocate from Italy, who started her advocacy work back in 2001 founding the AIPI Italian Pulmonary Hypertension Association and founded the European Federation for PH PHA Europe. Join this impactful conversation as they delve into what has been achieved in PH, what is still needed, the reasons for the recently launched Alliance for Pulmonary Hypertension, and the future role patient engagement should play in the field. #patientsonthemove #podcast #pulmonaryhypertension #rarediseases #patientengagement
Patient Advocacy in Pulmonary Hypertension - with Pisana Ferrari
https://spotify.com
